A patient inspires doctors to learn more about a rare and potentially deadly cardiac condition
On a bright, frigid, winter’s day, Anne McAllister is wrapped in scarlet as she takes a brisk stroll along her Ottawa street.
Her coat’s colour is fitting. She’s like a beacon for the place that restored her health.
"We are incredibly lucky to have an institution like the Ottawa Heart Institute here in Ottawa," said McAllister.
February is Heart Month.
And McAllister’s heart is gratitude-filled for the lifesavers working at the University of Ottawa Heart Institute.
"They come from all over the world because it attracts the best minds and best researchers," said the 71-year-old.
It was more than a decade ago that those same minds and researchers would help Anne with a sudden change in her heart health.
"I could feel my heart pumping. I would get very red. I could feel myself getting overheated," she said.
Initially, McAllister was having frequent spells of arrhythmia-- a racing heart.
"I had a series of what they call tachycardia, very rapid heart rate."
And not long after, she began experiencing Bradycardia.
"Which is a very low heart rate, like in the 30’s," she said.
Anne McAllister walking on the treadmill. (Joel Haslam/CTV News Ottawa)
McAllister was admitted to the University of Ottawa Heart Institute where a pacemaker was implanted to correct her heart rate.
"And everything was fine, until two years later, when things changed again," she said.
It was 2009 and Anne was now back in hospital with heart failure.
Doctors realized the fit and active patient was dealing with more than a typical arrhythmia. Eventually, McAllister was diagnosed with Cardiac Sarcoidosis; a rare, and potentially, deadly condition that had gone undetected during her initial visits to hospital.
"That’s why I feel so bad about Anne’s case. We missed it for two years and she sustained substantial damage," said Dr. David Birnie, a cardio physiologist at the University of Ottawa Heart Institute.
Sarcoid is an auto-inflammatory disease. It can affect any organ in the body. Its cause is unknown.
Between 20,000 and 30,000 people are living with sarcoid disease in Canada. Only five per cent of those patients will experience significant heart-related issues. It impacts people in the prime of their lives, ages 30 to 60.
There is no known cure, but early detection is vital.
"Left untreated, or If we don’t pick it up early, it can be fatal, because in some patients, the heart gets progressively more and more damaged," said Dr. Birnie.
With medications, doctors were able to prevent any further damage to McAllister’s heart. Her case inspired Dr. Birnie to start investigating a disease many in the medical community didn’t know a great deal about. Cardiac Sarcoidosis would become a focal point of Dr. Birnie’s research.
"I was just very fascinated by this disease and the potential to help people," she said.
In 2014, Birnie and others published the first international guidelines for diagnosing the condition. A study is underway, conducting a registry with 1,500 patients from 15 hospitals.
And the Ottawa Heart Institute now operates a Cardiac Sarcoidosis Clinic, receiving 100 referrals per year.
Anne McAllister. (Photo courtesy: Anne McAllister)
Anne’s heart condition did mean an abrupt end to her career as a lawyer with the Federal Department of Justice at age 59.
"I came home from work on a Friday and went into the Heart Institute over the weekend and never went back to work," she said.
Today, Anne’s living a full life. Heart failure, though, has meant accepting changes.
She tires going up hills, has less stamina, and needs help with some outdoor chores, like gardening.
She works out regularly with a trainer, and has been fitted with a pacemaker-defibrillator.
"It’s my own little defibrillator that will go off, if I have a heart attack," she said.
McAllister is an avid traveller and is eager to see the world again.
"I’ll be excited when I can get on a plane again and go somewhere," she laughed.
For now, Anne gives back to the place that has given so much to her.
"In 2018, I was named 'Volunteer of the Year' at the Heart Institute,” she said with a smile.
"It was thrilling. I was very appreciative and humbled to receive that award."
You can donate to the University of Ottawa Heart Institute at Februraryisheartmonth.ca.
Your donations will be matched this month by the Institute’s community match champions.
CTVNews.ca Top Stories
Widow looking for answers after Quebec man dies in Texas Ironman competition
The widow of a Quebec man who died competing in an Ironman competition is looking for answers.
Tom Mulcair: Park littered with trash after 'pilot project' is perfect symbol of Trudeau governance
Former NDP leader Tom Mulcair says that what's happening now in a trash-littered federal park in Quebec is a perfect metaphor for how the Trudeau government runs things.
World seeing near breakdown of international law amid wars in Gaza and Ukraine, Amnesty says
The world is seeing a near breakdown of international law amid flagrant rule-breaking in Gaza and Ukraine, multiplying armed conflicts, the rise of authoritarianism and huge rights violations in Sudan, Ethiopia and Myanmar, Amnesty International warned Wednesday as it published its annual report.
Photographer alleges he was forced to watch Megan Thee Stallion have sex and was unfairly fired
A photographer who worked for Megan Thee Stallion said in a lawsuit filed Tuesday that he was forced to watch her have sex, was unfairly fired soon after and was abused as her employee.
Amid concerns over 'collateral damage' Trudeau, Freeland defend capital gains tax change
Facing pushback from physicians and businesspeople over the coming increase to the capital gains inclusion rate, Prime Minister Justin Trudeau and his deputy Chrystia Freeland are standing by their plan to target Canada's highest earners.
U.S. Senate passes bill forcing TikTok's parent company to sell or face ban, sends to Biden for signature
The Senate passed legislation Tuesday that would force TikTok's China-based parent company to sell the social media platform under the threat of a ban, a contentious move by U.S. lawmakers that's expected to face legal challenges.
Wildfire southwest of Peace River spurs evacuation order
People living near a wildfire burning about 15 kilometres southwest of Peace River are being told to evacuate their homes.
U.S. Senate overwhelmingly passes aid for Ukraine, Israel and Taiwan with big bipartisan vote
The U.S. Senate has passed US$95 billion in war aid to Ukraine, Israel and Taiwan, sending the legislation to President Joe Biden after months of delays and contentious debate over how involved the United States should be in foreign wars.
'My stomach dropped': Winnipeg man speaks out after being criminally harassed following single online date
A Winnipeg man said a single date gone wrong led to years of criminal harassment, false arrests, stress and depression.