A cross-country journey to raise awareness about a genetic heart disease rolled into Ottawa on Saturday
An Ontario man cycling across Canada to raise awareness about Arrhythmogenic Right Ventricular Cardiomyopathy peddled into Ottawa on Saturday.
Adam Hoerdt stopped in the capital to meet supporters before he heads southwest to Brockville, then on to Waterloo, Ont.
Known as ARVC, it is a genetic disorder that can cause sudden cardiac arrest in people who appear perfectly healthy.
Hoerdt says the disease of the heart muscle has affected members of his family, including his children. He also lost his wife to the disease 20 years ago.
"We lost my wife in 2001 at the age of 31 while we were doing something that we loved, side-by-side on the outfield of a softball game," Hoerdt said. "My 23-year-old son has had five cardiac arrests from this disease and is currently in a vegetative state in Cambridge, Ont."
Hoerdt’s other son Benjamin also has ARVC, along with six other members of their extended family. He says what his dad is doing makes him proud and has created a network of people across the country who are there to support each other.
"It’s been nice to find a support network, like all the people that are here today, to help get through it as a community not just have to go through it on our own," Benjamin said.
The ARVC diagnosis has given him the chance to reflect on his life and find ways to make it better.
"It completely changed my outlook on life, I was kind of not the person I’d have liked to have been for some of my life, this really made me open up," Benjamin said. "Don’t postpone joy, don’t hesitate. If you enjoy something just do it."
Hoerdt’s says he has three goals in this journey - Raise awareness, build a family support network, and support research into ARVC. His family foundation is raising $75,000 a year to support a research fellowship.
"We don’t have to be content with, 'Oh somebody died of a bad heart or cardiac arrest', let’s figure out why and ARVC is one of the reasons why it happens.”
You can follow Hoerdt’s journey on Facebook and learn more about ARVC and support his ride here.
CTVNews.ca Top Stories
BREAKING Donald Trump picks former U.S. congressman Pete Hoekstra as ambassador to Canada
U.S. president-elect Donald Trump has nominated former diplomat and U.S. congressman Pete Hoekstra to be the American ambassador to Canada.
Genetic evidence backs up COVID-19 origin theory that pandemic started in seafood market
A group of researchers say they have more evidence to suggest the COVID-19 pandemic started in a Chinese seafood market where it spread from infected animals to humans. The evidence is laid out in a recent study published in Cell, a scientific journal, nearly five years after the first known COVID-19 outbreak.
This is how much money you need to make to buy a house in Canada's largest cities
The average salary needed to buy a home keeps inching down in cities across Canada, according to the latest data.
'My two daughters were sleeping': London Ont. family in shock after their home riddled with gunfire
A London father and son they’re shocked and confused after their home was riddled with bullets while young children were sleeping inside.
Smuggler arrested with 300 tarantulas strapped to his body
Police in Peru have arrested a man caught trying to leave the country with 320 tarantulas, 110 centipedes and nine bullet ants strapped to his body.
Boissonnault out of cabinet to 'focus on clearing the allegations,' Trudeau announces
Prime Minister Justin Trudeau has announced embattled minister Randy Boissonnault is out of cabinet.
Baby dies after being reported missing in midtown Toronto: police
A four-month-old baby is dead after what Toronto police are calling a “suspicious incident” at a Toronto Community Housing building in the city’s midtown area on Wednesday afternoon.
Sask. woman who refused to provide breath sample did not break the law, court finds
A Saskatchewan woman who refused to provide a breath sample after being stopped by police in Regina did not break the law – as the officer's request was deemed not lawful given the circumstances.
Parole board reverses decision and will allow families of Paul Bernardo's victims to attend upcoming parole hearing in person
The families of the victims of Paul Bernardo will be allowed to attend the serial killer’s upcoming parole hearing in person, the Parole Board of Canada (PBC) says.